and Medicine Engineering National Academies of Sciences, Policy and Global Affairs, Division on Earth and Life Studies, Division on Engineering and Physical Sciences, Board on Research Data and Information, Board on Life Sciences, Computer Science and Telecommunications Board, Committee on Applied and Theoretical Statistics, Board on Mathematical Sciences and Analytics, Committee on Forecasting Costs for Preserving and Promoting Access to Biomedical Data Life-Cycle Decisions for Biomedical Data

Annotation

Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.